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2016-2020

Nary and Coulter Present to Medical Student Group

Dot Nary, RTC/IL researcher, and Seth Coulter, RTC/IL communication specialist, presented "Writing and Speaking about People with Disabilities - With Dignity" to the KUMC student chapter of the American Association of Developmental Medicine and Dentistry. The group learned about several topics presented in the newly released 9th edition of Guidelines: How to Write about People with Disabilities, such as the Independent Living movement, person-first and identity language, and recommended terminology for discussions of disability. Ten students attended the online presentation. 

Research and Training Center on Independent Living Releases 9th Edition of Writing Guidelines

July 26, 2020

The Research and Training Center on Independent Living (RTC/IL), a research center at the Life Span Institute at the University of Kansas, celebrated the 30th Anniversary of the Americans with Disabilities Act (ADA) by releasing the 9th edition of Guidelines: How to Write about People with Disabilities

Acknowledging that the language we use to discuss disability shapes perceptions of people with disabilities, the Guidelines summarize key concepts in the Disability Community and recommend objective, respectful terminology to use when writing about disability. The recommendations were reviewed and endorsed by national organizations representing people with disabilities.

New to the 9th edition is a discussion of a recent shift in some communities from a preference for person-first language to a preference for identity language. Person-first language literally puts the person first in a sentence, emphasizing their basic humanity before stating an objective fact, as in people with autism. Identity language expresses disability pride with such direct statements as I am autistic.     

“Language evolves, and the Guidelines document evolution in disability language, noting terms that are rejected because they are stigmatizing and others that are preferred because they are factual and promote dignity,” says Jean Hall, Director of the RTC/IL.

The first edition of the Guidelines was published in 1984. Since then, RTC/IL has distributed more than a million copies, and recommendations from the Guidelines have been adopted by The Associated Press Stylebook, the Publication Manual of the American Psychological Association, the American Association for the Advancement of Science, and other professional organizations.


RTC/IL Staff Receive Major Awards

February 17, 2020: Two RTC/IL staff members recently received major financial awards. Kelsey Shinnick Goddard,  Research Project Coordinator, received the American Association on Health and Disability (AAHD) Frederick J. Krause Scholarship on Health and Disability. Jay Schultz, Graduate Research Assistant, received the Health and Disability Fellowship from the National Association of County and City Health Officials. 

Goddard's award recognizes deserving students with a disability who are pursuing studies related to health and disability. She was one of two people to recieve it nationally. The Scholarship on Health and Disabillity honors the life and career of AAHD co-founder Frederick J. Krause. 

Schultz's fellowship allows graduate students to gain entry level experience in the public health workforce and to learn about people with disabilities as a public health priority population.


Systematic Review Webinar Scheduled for Oct. 29

All are invited to attend a webinar on "Multifaceted Interventions for Supporting Community Participation Among Adults with Disabilities: A Systematic Review" on Oct. 29 at 2-3 pm Eastern time. Read more.


Jean Hall Publishes Article on Oral Health Needs of Medicaid Enrollees with Serious Mental Illness

RTC Director Jean Hall and colleagues have published "Oral Health Needs and Experiences of Medicaid Enrollees With Serious Mental Illness" in the American Journal of Preventive Medicine (online August 2018). This study investigated the experiences of Kansas Medicaid enrollees with serious mental illness in accessing dental services, examined their oral health risk factors, and identified oral health needs and outcomes.


Jean Hall Publishes Article on Medicaid Expansion

Jean Hall and colleagues published "Medicaid Expansion as an Employment Incentive Program for People With Disabilities" in the American Journal of Public Health (Sept. 2018). U.S. News & World Report featured the study's findings that there is a higher rate of employment among people with disabilities in states where Medicaid has been expanded.


Jean P. Hall Named Center Director

Jean P. Hall, PhD, has been appointed Director of the Research and Training Center on Independent Living. Read more.


New Resource Available for "Making Homes Visitable"

Dot Nary has published a guide that helps wheelchair users and potential hosts find ways to make a visit possible.


Zhang Successfully Defends Dissertation

Congratulations to Dr. E "Alice" Zhang on successfully defending her dissertation on April 18! Read more.


Watch "Always Available: Community Living Resources

The Research and Training Center on Community Living completed its work in September 2017 - but our resources are still here for you! Watch this video to learn about some of them.


"Stoplights Don't Stop Us!" Video Highlights Community Advocacy Success

This new video (also available with audio description) features one successful outcome of our project to build the capacity of consumers to make change in their communities. Read the KU news story.


Advisor Profile: Phil Rumrill

Phil Rumrill shared his perspectives on Center research during a campus visit. Read story.


Advisor Profile: Stan Holbrook

Stan Holbrook visited the Center to discuss ideas for disseminating its research. Read story.


KU disability researchers edit special journal issue

The RTC/IL's Glen White and Jean Ann Summers co-edited an issue of the Journal of Prevention & Intervention in the Community, and other staff members contributed articles. Read story.


Researchers Find Secrets to Resilience

With the help of a trait known as resilience, many people with disabilities who live in rural areas have achieved a good quality of life and are able to participate in their communities. Read story.


Accessible Parking Etiquette: New Brochure Available

The Center's new brochure explains the dos and don'ts of accessible parking.


Bob Dole Makes Gift to RTC/IL

Former U.S. Sen. Bob Dole has made a gift of $10,000 to the University of Kansas Research and Training Center on Independent Living. Read story.


Center Supports Mixed-Ability Dance Workshops

The RTC/IL co-sponsored mixed-ability dance workshops held by AXIS Dance Company on Nov. 9. Read more. The workshops were held in conjunction with the company's performance at KU's Lied Center for the performing arts. Story and photos.


New Grant Supports Community Participation

The RTC/IL has been awarded a five-year, $4.375 million grant from the National Institute on Disability, Independent Living, and Rehabilitation Research to promote community participation for adults with physical disabilities. Read more.


Community Living Summit

At the Community Living Summit, Center partners presented the findings of their research to a gathering of disability advocates, other researchers and policymakers from national organizations. See the presentations.


Center Partners on CDC Health Program

RTC staff are working on a project to improve the health of Kansans with disabilities. Read more.


Alice Zhang Receives Award

Graduate student Alice Zhang received the LSI 2015 Early Stage Graduate Award. Read more.


Advisor Profile: Ron Garcia

Ron Garcia visited the Center to share his perspective as a CIL director. Read more.


Guidelines Now in Spanish

The RTC/IL has produced a Spanish version of its internationally known recommendations for disability terminology. Read more.



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Home visitability is an important part of independent living, and RTC/IL has done much work in this area during its… https://t.co/RWxjE2bYBs


More About the Center

In addition to our News page, we publish a RTC/IL newsletter for disability advocates and stakeholders of our work.

To subscribe, please email rtcil@ku.edu.

 

Celebrating the ADA at 25

Our Center celebrated the 25th anniversary of the Americans with Disabilities Act with this tote bag.

A woman models the tote bag, which says, "Celebrating the ADA - 25 years and going strong." The Center's logo is beneath the slogan.

We distributed the tote at national and local events to spread the word about this landmark civil rights law.

 

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